<br /><br /> About the Speaker: Michael Joseph, PMP, is a chronic illness patient from Norther Virginia, currently the founder …
Coping with those diseases in the public health care system is difficult because a lot of those diseases have specialists. Those specialists even within the same hospital system as I have, rarely talk to each other.
About 75% of the patients who are living with autoimmune diseases are women. Some studies show that women are unfortunately not always believed by physicians that they are in pain.
I love my hospital but it’s not perfect because no system is and I think for patients with chronic illnesses in the biggest places that the health systems fail us is by being so sort of like locked into lab reports and that’s life and die by the lab report.
There are fewer Asians out there and people who are minorities who are advocating. I go to conferences to advocate–with other advocates or psoriasis conferences and there are few Asians
When I aged out of their insurance, I had to focus on getting a good job, getting something that I could support myself, and getting the insurance to pay for those medications.