Tag Archives: Patient Story

Christine’s drive to make lives better for patients has been nationally recognized. In 2019, she spoke on stage at the Startup Health Festival as an invited guest of Sanguine Biosciences.

Everyone has a complete spectrum of ways that illness can impact their life but continuing to see the good in every day, celebrating the successes whether they are incredibly small or big is incredibly important.

My doctors and I talk a lot when I see them, we have a conversation and, I’m grateful for this. Because, before I went into kidney failure I didn’t have great doctors, they were horrible doctors.

When there are any power dynamics or things that feel uncomfortable, it creates a unhealthy situation and a scary one that doesn’t feel good. I have had a lot of experiences with doctors who were white and who were dismissive of what I was saying.

There are roughly 30,000 people living in the United States with Cystic Fibrosis. A Chronic disease caused by CFTR gene mutation. This mutation impacts the way protein is made in the body leading to inefficient salt transport over the cell membrane resulting in the buildup of sticky, thick mucus in different tissues and organs. 

25 – 30 million people in the United States, 30 million people in the European Union, have been diagnosed with a Rare Disease. During this time we ask that you help patients living with chronic illnesses by adhering to public health officials recommendations.