25 – 30 million people in the United States, 30 million people in the European Union, have been diagnosed with a Rare Disease. During this time we ask that you help patients living with chronic illnesses by adhering to public health officials recommendations.
Tag Archives: patient experience
Patient Advocate Dima Hendricks A Sickle Cell Survivor, Shares Her Story with Racial Bias in Medicine
Black Americans are systematically under-treated for pain relative to white Americans and women are less likely to be believed about their pain symptoms in comparison to their male counterparts.
A Voice For Young Adults Living With Chronic Illness | Sneha Dave
<br /> Meet Sneha Dave, Founder of The Health Advocacy Summit. She created a movement for young adults living …
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Digital Redlining & Tele-Health | Amy R. Sheon, Ph.D., M.P.H.
<br /> Meet Amy R. Sheon, Ph.D., M.P.H. Dr. Sheon is the Executive Director, Urban Health Initiative, Case Western Reserve University …
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Removing Data Burdens Faced By Patients & Clinicians
<br /> Meet Anil Sethi, Founder & CEO of Ciitizen In this Vlog Anil shares how his personal experience as …
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A Previvor’s Patient Journey & Perspective on Security Vulnerabilities Among Peer Support Groups | Andrea Downing
Frustrated with lack of options beyond removing body parts, Andrea started Brave Bosom in 2012 as a place to write about her own experiences relating to BRCA.