Navigating COVID19 As A Lupus Warrior of 20+ Years

My doctors and I talk a lot when I see them, we have a conversation and, I’m grateful for this. Because, before I went into kidney failure I didn’t have great doctors, they were horrible doctors.

Navigating COVID-19 as a Chronically ill Patient | Ash Canty

When there are any power dynamics or things that feel uncomfortable, it creates a unhealthy situation and a scary one that doesn’t feel good. I have had a lot of experiences with doctors who were white and who were dismissive of what I was saying.

Provoking Change, Promoting Better Care | Michael Millenson

You can’t treat healthcare like it’s an industry, it’s not that.  You absolutely have to have the right financial incentives which are just as important as not forgetting to appeal to people’s sense of mission.

Cystic Fibrosis Patients and COVID-19: Why Social Distancing is Critical

There are roughly 30,000 people living in the United States with Cystic Fibrosis. A Chronic disease caused by CFTR gene mutation. This mutation impacts the way protein is made in the body leading to inefficient salt transport over the cell membrane resulting in the buildup of sticky, thick mucus in different tissues and organs. 

Combating Fear Spread Through The Media During COVID-19 Pandemic

The media plays a critical role in communication during times of crisis, disaster, and emergencies, broadcasting information to those who need it most.

Amplifying the Voice of Chronically ill Patients Amid COVID-19 Pandemic

25 – 30 million people in the United States, 30 million people in the European Union, have been diagnosed with a Rare Disease. During this time we ask that you help patients living with chronic illnesses by adhering to public health officials recommendations.