My doctors and I talk a lot when I see them, we have a conversation and, I’m grateful for this. Because, before I went into kidney failure I didn’t have great doctors, they were horrible doctors.
When there are any power dynamics or things that feel uncomfortable, it creates a unhealthy situation and a scary one that doesn’t feel good. I have had a lot of experiences with doctors who were white and who were dismissive of what I was saying.
You can’t treat healthcare like it’s an industry, it’s not that. You absolutely have to have the right financial incentives which are just as important as not forgetting to appeal to people’s sense of mission.
There are roughly 30,000 people living in the United States with Cystic Fibrosis. A Chronic disease caused by CFTR gene mutation. This mutation impacts the way protein is made in the body leading to inefficient salt transport over the cell membrane resulting in the buildup of sticky, thick mucus in different tissues and organs.
The media plays a critical role in communication during times of crisis, disaster, and emergencies, broadcasting information to those who need it most.
25 – 30 million people in the United States, 30 million people in the European Union, have been diagnosed with a Rare Disease. During this time we ask that you help patients living with chronic illnesses by adhering to public health officials recommendations.